One of the greatest challenges facing ALS families is caregiver fatigue. We offer a small number of need-based grants that allow these families to bring in qualified help to allow the Primary caregiver to rest.
While we work to slow and stop ALS, we’re also seeking to meet current patient needs. One of these needs is a way for ALS families to capture the life history of the patient. We're exploring ways to meet this need. We started by working with the family of Whitney Hill, an incredible woman who passed from ALS in 2018. We’ve made great progress with “Project Whitney” and hope to be able to share more soon
In 2017, founders Seth and Amy Christensen were invited to share their story and the ALS Crowd mission with the staff of Denali Therapeutics, an innovative biotechnology company dedicated to defeating neurodegenerative diseases including ALS. Seth became Denali’s first Patient Fellow the following Spring and, in this role, pursued their shared mission to advance ALS research in the US and, in 2019, Western Europe.
We now offer ALS Crowd Patient Fellowships, allowing ALS patients and family members the opportunity to take a direct role in our mission.
On September 16th 2023 we will hold the 8th Annual Blues Barbershop car show benefiting ALS Crowd. Come enjoy live music, classic cars, and great food. Donate to our programs.