Researchers Find a Specific Biomarker for ALS that May Improve the Diagnostic Process
ALS NEWS - January 19, 2021
Diagnosing Amyotrophic Lateral Sclerosis (ALS) can take between 9 to 12 months. Finding a “biomarker” or a physical attribute that confirms ALS onse... Read More
Medication Using Gold Crystals with Promising Potential for ALS Treatment
Medication Using Gold Crystals with Promising Potential for ALS Treatment
ALS NEWS - January 19, 2021
Over 40% of the participants in the phase 2 clinical trial for CNM-Au8 show improvements in health. CNM-AU8 is a gold nanocrystal suspension treatment designed ... Read More
ALS Diagnosis: The Slowest Part of this Rapidly Progressing Disease
ALS Diagnosis: The Slowest Part of this Rapidly Progressing Disease
LIFE WITH ALS - January 06, 2021
Becoming diagnosed with Amyotrophic Lateral Sclerosis (ALS) is often a slow and difficult process. It can take 9-12 months for specialists to confirm this diagn... Read More
No More Saying, “ALS Does Not Affect the Mind”!
LIFE WITH ALS - December 23, 2020
Stephen Hawking lived with ALS (Amyotrophic Lateral Sclerosis) for 55 years. After he passed, his life was celebrated by recounting how brilliant his ... Read More
New ALS Disability Bill Passed Congress, Waving the Five-Month Waiting Period for Social Security Disability Insurance
ALS NEWS - December 08, 2020
After 4 years of challenging work and 54,000 phone calls, letters, and emails to Congress from advocates like you, Congress passed a law that wai... Read More
The Burden of ALS and the Value of Family Caregivers
LIFE WITH ALS - December 07, 2020
Each home is different and everyone’s situation is unique, but an ALS diagnosis changes the life of both the pALS (person with ALS) and their family. Whet... Read More
FDA Grants Orphan Drug Status to Promising Treatment for ALS Called SLS-005
ALS NEWS - November 25, 2020
Seelos Therapeutics is working on a treatment called SLS-005 or trehalose to treat Amyotrophic Laterals Sclerosis. The drug proves to be eff... Read More
What are the Current and Up-and-Coming Therapies Available to People with ALS?
ALS 101 - November 18, 2020
Amyotrophic Lateral Sclerosis (ALS) is a rapidly progressing disease that damages muscle neurons in the body. Researchers have been working on treating ALS for ... Read More
What is Gene Therapy and How is it Changing the Future for ALS?
ALS NEWS - October 29, 2020
Amyotrophic lateral sclerosis, or ALS, is a neurological disease that causes the death of motor neurons. More commonly known as Lou Gehrig’s disease, ALS ... Read More
A New Advancement in Gene Therapy for ALS Patients
ALS NEWS - October 27, 2020
In a press release this week Ionis Pharmaceuticals, a leader in gene therapy treatments, announced its first gene therapy medication designed to treat... Read More
It is Time for Representatives to Step Up to the Plate and Support the ALS Disability Insurance Access Act
LIFE WITH ALS - October 21, 2020
It has been 20 months since ALS (Amyotrophic Lateral Sclerosis) advocacy groups got together to reach more than 360 sponsors in both the house and the... Read More
Small ALS Research Teams are Breaking New Ground in ALS Treatment
ALS NEWS - October 19, 2020
Life with ALS is not an easy one. There are only a small number of treatments available for those diagnosed with this rapidly progressing neurological... Read More
Phase II ALS Clinical Trial Produces Promising Results for AMX0035
ALS NEWS - September 29, 2020
The Pharmaceutical company AMYLYX recently released promising results for the ALS drug AMX0035 after Phase II clinical trials were completed. The results d... Read More
