Researchers Find a Specific Biomarker for ALS that May Improve the Diagnostic Process

ALS NEWS - January 19, 2021

Diagnosing Amyotrophic Lateral Sclerosis (ALS) can take between 9 to 12 months. Finding a “biomarker” or a physical attribute that confirms ALS onse... Read More

Medication Using Gold Crystals with Promising Potential for ALS Treatment

Over 40% of the participants in the phase 2 clinical trial for CNM-Au8 show improvements in health. CNM-AU8 is a gold nanocrystal suspension treatment designed ... Read More

ALS Diagnosis: The Slowest Part of this Rapidly Progressing Disease

Becoming diagnosed with Amyotrophic Lateral Sclerosis (ALS) is often a slow and difficult process. It can take 9-12 months for specialists to confirm this diagn... Read More

No More Saying, “ALS Does Not Affect the Mind”!

LIFE WITH ALS - December 23, 2020

Stephen Hawking lived with ALS (Amyotrophic Lateral Sclerosis) for 55 years. After he passed, his life was celebrated by recounting how brilliant his ... Read More

New ALS Disability Bill Passed Congress, Waving the Five-Month Waiting Period for Social Security Disability Insurance

ALS NEWS - December 08, 2020

After 4 years of challenging work and 54,000 phone calls, letters, and emails to Congress from advocates like you, Congress passed a law that wai... Read More

The Burden of ALS and the Value of Family Caregivers

LIFE WITH ALS - December 07, 2020

Each home is different and everyone’s situation is unique, but an ALS diagnosis changes the life of both the pALS (person with ALS) and their family. Whet... Read More

FDA Grants Orphan Drug Status to Promising Treatment for ALS Called SLS-005

ALS NEWS - November 25, 2020

Seelos Therapeutics is working on a treatment called SLS-005 or trehalose to treat Amyotrophic Laterals Sclerosis. The drug proves to be eff... Read More

What are the Current and Up-and-Coming Therapies Available to People with ALS?

ALS 101 - November 18, 2020

Amyotrophic Lateral Sclerosis (ALS) is a rapidly progressing disease that damages muscle neurons in the body. Researchers have been working on treating ALS for ... Read More

What is Gene Therapy and How is it Changing the Future for ALS?

ALS NEWS - October 29, 2020

Amyotrophic lateral sclerosis, or ALS, is a neurological disease that causes the death of motor neurons. More commonly known as Lou Gehrig’s disease, ALS ... Read More

A New Advancement in Gene Therapy for ALS Patients

ALS NEWS - October 27, 2020

In a press release this week Ionis Pharmaceuticals, a leader in gene therapy treatments, announced its first gene therapy medication designed to treat... Read More

It is Time for Representatives to Step Up to the Plate and Support the ALS Disability Insurance Access Act

LIFE WITH ALS - October 21, 2020

It has been 20 months since ALS (Amyotrophic Lateral Sclerosis) advocacy groups got together to reach more than 360 sponsors in both the house and the... Read More

Small ALS Research Teams are Breaking New Ground in ALS Treatment

ALS NEWS - October 19, 2020

Life with ALS is not an easy one. There are only a small number of treatments available for those diagnosed with this rapidly progressing neurological... Read More

Phase II ALS Clinical Trial Produces Promising Results for AMX0035

ALS NEWS - September 29, 2020

The Pharmaceutical company AMYLYX recently released promising results for the ALS drug AMX0035 after Phase II clinical trials were completed. The results d... Read More