What are the Current and Up-and-Coming Therapies Available to People with ALS?

ALS 101 - November 18, 2020

Amyotrophic Lateral Sclerosis (ALS) is a rapidly progressing disease that damages muscle neurons in the body. Researchers have been working on treating ALS for ... Read More

What is Gene Therapy and How is it Changing the Future for ALS?

Amyotrophic lateral sclerosis, or ALS, is a neurological disease that causes the death of motor neurons. More commonly known as Lou Gehrig’s disease, ALS ... Read More

A New Advancement in Gene Therapy for ALS Patients

In a press release this week Ionis Pharmaceuticals, a leader in gene therapy treatments, announced its first gene therapy medication designed to treat... Read More

It is Time for Representatives to Step Up to the Plate and Support the ALS Disability Insurance Access Act

LIFE WITH ALS - October 21, 2020

It has been 20 months since ALS (Amyotrophic Lateral Sclerosis) advocacy groups got together to reach more than 360 sponsors in both the house and the... Read More

Small ALS Research Teams are Breaking New Ground in ALS Treatment

ALS NEWS - October 19, 2020

Life with ALS is not an easy one. There are only a small number of treatments available for those diagnosed with this rapidly progressing neurological... Read More

Phase II ALS Clinical Trial Produces Promising Results for AMX0035

ALS NEWS - September 29, 2020

The Pharmaceutical company AMYLYX recently released promising results for the ALS drug AMX0035 after Phase II clinical trials were completed. The results d... Read More

Fighting Through ALS Together: How Do You Manage Mental Health?

LIFE WITH ALS - September 19, 2020

When fighting through ALS we make it farther when we fight together. Being diagnosed with a chronic disease such as ALS results in life altering chang... Read More

ALS Patient Warren Osborne Wins Venture Fuel Award

LIFE WITH ALS - September 16, 2020

The Venture Fuel Summit of Friday the 11th featured speakers, panels, and competitions from across Utah’s startup and tech scene. But for one winner at th... Read More

Financial Coach: Understanding Medicare And When To Shop Around For Best Coverage–Part 1

LIFE WITH ALS - September 16, 2020

By Diahanna Vallentine This is part one in a series of articles to assist you in preparing for Medicare enrollment and health insurance review. &nb... Read More

New Promising Neurological Treatment for Alzheimer's used in ALS in Phase 2 Clinical Trials

ALS NEWS - September 13, 2020

Amyotrophic Lateral Sclerosis (ALS) is a neurological disease that affects 400,000 people worldwide. It is characterized by progressive loss... Read More

A Note from the Founder: Seth’s Ten-Year ALS Update

LIFE WITH ALS - August 31, 2020

On August 24th, 2010, at about this time of day, I was sitting in an exam room, receiving the biggest shock I've yet experienced. A doctor, who I had&n... Read More

A Potential ALS Treatment is Back on Track After COVID-19 Disruption

ALS NEWS - August 31, 2020

This global pandemic has put a lot of things on pause. From sports to drug research, the world is doing a complete reboot. One of the biggest setbacks is fundin... Read More

Clene Nanomedicine Develops New Therapy for ALS Using Gold Nanocrystals

ALS NEWS - August 29, 2020

Clene Nanotechnologies, a Utah based company, has developed a nano-therapetic for neurodegenerative disorders including ALS. To date, Clene's preclinical tr... Read More