• ALS Crowd News
    • Feb 12, 2015

    Where are We Six Months after the ALS Ice Bucket Challenge?

Where are we six months after the Ice Bucket Challenge? In a recent article by CNBC, it noted the researchers and patient services were able to benefit from the over $115 million raised by the biggest idea in charitable giving in the history of ALS.

As an example, a previously rejected grant proposal by John Landers to sequence the genomes of patients with Lou Gehrig’s disease, as part of a worldwide project to better understand the illness, was now funded to the tune of $1M.

The report described additional help for specific projects to move the field forward:

The grant to Project MinE was one of four the ALS Association announced in October as part of the initial $22 million it allocated. The others are going to a partnership between academia and industry, called ALS Accelerated Therapeutics, to speed drug development; the New York Genome Center, to further explore the genetic basis of the disease; and three medical labs in California in a project called Neuro Collaborative, which also works on drug development.

The association aims to invest $21 million to $25 million a year in research projects, spokeswoman Carrie Munk said.

Most exciting is the excitement felt by the research community. The ALS Association has received triple the number of applications for grants for young scientists than in previous years.

Hopes are high that the windfall will lead to landmark discoveries in ALS.


About Author

Seth Christensen

Seth is an ALS patient and founder of ALS Crowd, a division of the CrowdCare Foundation. As host of the ALS Crowd Radio show, he interviews top ALS researchers and focuses his efforts on the aggregation of big data to help researchers and patients find clues that will drive to a cure.


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