Life with ALS

ALS Diagnosis: The Slowest Part of this Rapidly Progressing Disease

LIFE WITH ALS - January 06, 2021

Becoming diagnosed with Amyotrophic Lateral Sclerosis (ALS) is often a slow and difficult process. It can take 9-12 months for specialists to confirm this diagn... Read More

No More Saying, “ALS Does Not Affect the Mind”!

LIFE WITH ALS - December 23, 2020

Stephen Hawking lived with ALS (Amyotrophic Lateral Sclerosis) for 55 years. After he passed, his life was celebrated by recounting how brilliant his ... Read More

The Burden of ALS and the Value of Family Caregivers

LIFE WITH ALS - December 07, 2020

Each home is different and everyone’s situation is unique, but an ALS diagnosis changes the life of both the pALS (person with ALS) and their family. Whet... Read More

It is Time for Representatives to Step Up to the Plate and Support the ALS Disability Insurance Access Act

LIFE WITH ALS - October 21, 2020

It has been 20 months since ALS (Amyotrophic Lateral Sclerosis) advocacy groups got together to reach more than 360 sponsors in both the house and the... Read More

Fighting Through ALS Together: How Do You Manage Mental Health?

LIFE WITH ALS - September 19, 2020

When fighting through ALS we make it farther when we fight together. Being diagnosed with a chronic disease such as ALS results in life altering chang... Read More

ALS Patient Warren Osborne Wins Venture Fuel Award

LIFE WITH ALS - September 16, 2020

The Venture Fuel Summit of Friday the 11th featured speakers, panels, and competitions from across Utah’s startup and tech scene. But for one winner at th... Read More

Financial Coach: Understanding Medicare And When To Shop Around For Best Coverage–Part 1

LIFE WITH ALS - September 16, 2020

By Diahanna Vallentine This is part one in a series of articles to assist you in preparing for Medicare enrollment and health insurance review. &nb... Read More

A Note from the Founder: Seth’s Ten-Year ALS Update

LIFE WITH ALS - August 31, 2020

On August 24th, 2010, at about this time of day, I was sitting in an exam room, receiving the biggest shock I've yet experienced. A doctor, who I had&n... Read More

Just Diagnosed With ALS? What Equipment is Helpful?

LIFE WITH ALS - August 24, 2020

If you have just been diagnosed with Amyotrophic Lateral Sclerosis, this equipment may be helpful for maintaining the best quality of life:  "Your ... Read More

Should You Be Crushing Your Riluzole Tablets? New Easy-to-Swallow Administration Helps.

LIFE WITH ALS - August 03, 2020

Are you or your pALS taking Riluzole? Riluzole is the only FDA-approved treatment for ALS. For you and your pALS it is import... Read More

Connect With ALS Crowd on Social Media: Together We're Stronger

LIFE WITH ALS - July 06, 2020

Connect With ALS Crowd on Social Media: Together We're Stronger ALS Crowd provides numerous ways to connect with other patients, caregivers, medical prof... Read More

Sleep and ALS

LIFE WITH ALS - June 23, 2020

For people with Amyotrophic Lateral Sclerosis, sleeping is a stressful time. Both patient and caregiver suffer from sleep disturbances which are common among pa... Read More

Staying positive with ALS during COVID-19

LIFE WITH ALS - June 04, 2020

The unknown of COVID-19 in itself can be a bit unnerving, but it's crucial we stay as positive as we can, especially with ALS. Added stress can cause i... Read More