WHAT IS HEALTHTREE?
HealthTree is a patient-led community effort that is in development where ALS patients own their data and merge it into a collective network with other ALS patients. As patients enter their data into the HealthTree platform, the collective data of many patients may identify treatment strategies that could slow progression of ALS.
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If there are no biomarkers or known effective treatments for ALS, then what gets us closer to the development of treatments or even a cure? ALS is such a tough disease because there is no way to identify causes, accurately track progression or identify working therapies.
Data for ALS patients is scattered across multiple sources and the only one who can aggregate it for relevance is the patient. With HealthTree for ALS, patients will be able to share strategies they use to delay treatment with other patients. Newer hypotheses could be generated by both the patient and research communities with shared patient data.
Over time with aggregated data from our collective patient experience, we will all learn which treatments are providing the best survival, identify patients who are living the longest and help us understand how to replicate their success.