By Heather Simonsen on KSL.com Seth Christensen’s computer tracks his eye movements so he can type like he used to, before ALS, commonly called Lou Gehrig’s disease, began stealing his abilities seven years ago. After an active life with four kids, the Christensen family’s youngest is just a baby. The diagnosis was devastating. “We had[...]

Michael Conti spent a year and a half preparing for the Race Across America.  He was riding to fulfill a childhood dream and to raise funds for ALS Crowd. Just outside of Alamosa, Colorado on June 17 his ride came to an abrupt end after a semi truck rear ended the cyclist’s support car.  Michael[...]

What does a map plotting patients with ALS look like? One such map shows that lakes with cyanobacteria, or blue-green algae, may be linked to  ALS. Dr. Elijah Stommel and Dr. Tracie Caller of the Dartmouth-Hitchcock Medical Center found that people living around a freshwater lake that has frequent blooms of cyanobacteria are up 25[...]

New ALS research results from Oregon State University scientists may offer hope for a new kind of treatment for ALS.  The treatment uses a chemical compound called copper-ATSM.  The study recently published in the journal of Neurobiology of Disease shows significant results in treating laboratory mice with ALS.  The treatment has not been tested yet[...]

Just six weeks ago, 800 scientists and healthcare professionals attended the International Symposium on ALS/MND.  This was an opportunity to share information about what is being discovered in all areas of research, from basic lab research to clinical trials.   Dr. Terry Heiman-Patterson of Drexel University College of Medicine recently summarized these professional meetings in[...]

Steve Gleason was diagnosed with ALS five years ago, at age 34, and told he had two to five years to live. At the time he was a famous NFL player, a defensive back for the New Orleans Saints. A few weeks after his diagnosis, he learned his wife Michel was expecting their first child.[...]

As seen on Shoreline Times By Sarah Page Kyrcz MADISON >> Amanda Bernier works very hard, on a daily basis, to keep in touch with her family, friends and acquaintances. For the 31-year-old new mom this is no small feat. Two weeks after finding out she was pregnant, Amanda Bernier was diagnosed with ALS. She[...]

As seen on ALS News Today The launch of Answer ALS, the largest comprehensive research project to cure Amyotrophic Lateral Sclerosis (ALS) was announced in a press release by the Johns Hopkins University’s Robert Packard Center for ALS Research in Baltimore, MD, the Cedars-Sinai Medical Center’s Regenerative Medicine Institute in Los Angeles, CA, and the Massachusetts General Hospital Neurological Clinical Research Institute, Boston, MA. ALS is a[...]

As seen on PRNewswire WASHINGTON, Sept. 24, 2015 /PRNewswire-USNewswire/ — The ALS Association and Target ALS are pleased to announce the launch of a new collaborative effort to expand the collection of biofluids from people with ALS, to be used for research to better understand the disease and ultimately develop new treatments. The ALS Association will be investing $1,392,668 over[...]

The 1st annual Blues Barbershop Car Show will take place on September 19at Holladay City Hall  (2300 E. 4650 S. in Salt Lake City) with all proceeds benefiting ALS Crowd. The event will include t-shirt sales, live music (including Ryan Innes from NBC’s The Voice), concessions, family activities, and new and classic cars. Sponsors are invited to co-brand merchandise,[...]