Every year roughly 5,600 people are diagnosed with ALS, a rare and progressive neurodegenerative disease. Because ALS is a terminal disease, it is critical that patients and caregivers share as much information as possible with their peers.
ALS Crowd invites you to join our patient and caregiver groups. We will be providing weekly information that includes ALS research news and helpful stories about life with ALS. Patients, family members and caregivers can find a community that offers support, information, and understanding.
Being a part of a group of people who understand what you are going through and can offer support and advice is essential when dealing with a challenging disease like ALS. Through this group those diagnosed with ALS are welcome to ask questions, share ways they have found that help delay or alleviate symptoms, post relevant information on ALS, as well as provide support for each other.
For Family and Caregivers:
As family members and caregivers of ALS patients, you are well-positioned to help us understand this disease and how we can find better treatments and therapies. We invite you to use this group as a place to share significant research findings, suggest best care approaches, and help us make advances to receive better care.