ALS Breakthrough at the University of Utah Could Be a Game-Changer for Patients

By Heather Simonsen on KSL.com Seth Christensen's computer tracks his eye movements so he can type like he used to, before ALS, commonly called Lou Gehrig's disease, began stealing his abilities seven years ago. After an active life with four kids, the Christensen family's youngest is just a baby. The diagnosis was devastating. "We had [...]

Read More

Riding for ALS Update: Semi Hits Cyclist Support Vehicle

Michael Conti spent a year and a half preparing for the Race Across America.  He was riding to fulfill a childhood dream and to raise funds for ALS Crowd. Just outside of Alamosa, Colorado on June 17 his ride came to an abrupt end after a semi truck rear ended the cyclist's support car. [...]

Read More

Promising ALS Copper-ATSM Treatments in Mice

New ALS research results from Oregon State University scientists may offer hope for a new kind of treatment for ALS.  The treatment uses a chemical compound called copper-ATSM.  The study recently published in the journal of Neurobiology of Disease shows significant results in treating laboratory mice with ALS.  The treatment has not been tested yet [...]

Read More

For ALS, Sharing Information is Critical

Just six weeks ago, 800 scientists and healthcare professionals attended the International Symposium on ALS/MND.  This was an opportunity to share information about what is being discovered in all areas of research, from basic lab research to clinical trials.   Dr. Terry Heiman-Patterson of Drexel University College of Medicine recently summarized these professional meetings in [...]

Read More

New Mom with ALS Uses State-of-the-Art Technology to Communicate

As seen on Shoreline Times By Sarah Page Kyrcz MADISON >> Amanda Bernier works very hard, on a daily basis, to keep in touch with her family, friends and acquaintances. For the 31-year-old new mom this is no small feat. Two weeks after finding out she was pregnant, Amanda Bernier was diagnosed with ALS. She [...]

Read More

Answer ALS: A Revolutionary Project to Cure ALS

As seen on ALS News Today The launch of Answer ALS, the largest comprehensive research project to cure Amyotrophic Lateral Sclerosis (ALS) was announced in a press release by the Johns Hopkins University’s Robert Packard Center for ALS Research in Baltimore, MD, the Cedars-Sinai Medical Center’s Regenerative Medicine Institute in Los Angeles, CA, and the Massachusetts General Hospital Neurological Clinical Research Institute, Boston, MA. ALS is a [...]

Read More

ALS Association and Target ALS to Expand Tissue Core for ALS Research

As seen on PRNewswire WASHINGTON, Sept. 24, 2015 /PRNewswire-USNewswire/ -- The ALS Association and Target ALS are pleased to announce the launch of a new collaborative effort to expand the collection of biofluids from people with ALS, to be used for research to better understand the disease and ultimately develop new treatments. The ALS Association will be investing $1,392,668 over [...]

Read More